Well - it is has been a really busy week healthwise. Have seen 3 doctors over the past week, and all with different things.....man I wonder how I can keep up sometimes.
Okay so to drag you all back to last Wednesday, I saw my liver specialist, and I am not responding to the medication the way they thought I should and my liver results have not been declining.....so they have put me on other immune suppressants and still have me on steroids. They have apparently also referred my case to the head of the Auckland University Med school to look into ( I think the head of gastroenterology) as he said I am 'odd and unusual'......nice!!!!
I then saw my GP yesterday, which was fine, both Si and I went and it was in part to discuss if we can look at children in the future, that is still a bit uncertain with all of the meds etc, but he would like to refer me to a fertility specialist if we are going to go down that road as apparently I am old.....LOL.
Then yesterday I also saw the dermatologist who had taken a huge hunk out of my arm a couple of weeks ago and biopsed it.....and apparently although I tested negative via a blood test for Coeliac's disease the biopsy result came back as a very strong positive to Dermatitis Herpetiformis which is very closley linked with gluten intolerance. There is also a connection between that and Auto-Immune Liver disease......so I have been working out how I am going to manage a Gluten Free diet and a WLS surgery diet, and it shouldn't be too hard, and I got some ideas from Zola (the nurtitionist at my surgeons office).
Basically to me I am at the point that if I follow this diet now, and get my rash and liver under control, it will mean that I can most likely come off the steroids and long term may also mean that I don't need the immune suppressants, which would be fabulous. It also might mean that I can finally break the 100 kgs barrier and lose some more weight, although that has crept up over hte last week with the new combination of drugs and is now hovering around 108 kgs.......if it gets to 110 I will freak right out!!!!!
In talking with Zola today we talked about how post op there seems to be two types of people, ones that embrace the new diets with flair and ease and see food as a fuel and adapt easily......and then there are people like me, who have a relationship with food, and I have to enjoy what I am eating, and I can't have the same thing day in and day out.....just doesn't do it for me. It is an addiction, and I need to be able to figure out how to live with it and handle that addiction on a daily basis.....like today....I knew that gluten was off the table......so what did i manage to find that had no gluten in it???? Cadbury's Dairy Milk Chocolate!!!!!!! How stupid is that!!!!!!!!!!!!!! Here I am trying to actually make a positive change to help my health and I still can manage to sabotage myself and eat something that is not good for other aspects of my health........just stupid, but I really do think that part of me was feeling like I was missing out on something, so I replaced that something (bread) with the chocolate.
So if anyone has any good gluten free recipies please send them my way as I have to get my head around this!!!!