Friday, June 12, 2009

Back Home....but still no answers

Just a quick update to let you know I am back home now. I had a Gastroscopy this morning and good news is that my RNY pouch looks fine and dandy.......but of course they decided not to try adn go further down which is stupid, cos that is what I had been telling them.

So I am now discharged and officially an out-patient until they can figure out what is wrong with me. I still have really high liver function levels and I am still getting the bumps and lumps. I sitll have the shoulder pain, although not as bad......but the good news is that I am less yellow than I was and I can apparently work when I feel up to it, for as long as I feel up to it.

Although hte ultrasound showed a inflamed and possibly blocked bile duct, they are not going to do the ERCP (shove something down my throat with dye and find a blockage and take xray's from the inside) but they are now going to send me and appointment for an MRI and a liver Biospy, as they are now favouring towards me having auto-immune liver disease. Which somewhat explains everythng combined.....the rashed and bumps on my legs are an auto immune repsonse and I have come back positive in my bloods for some of those as well. And off course I have grossly abnormal liver function results..........SO, is that as clear as mud?

Having been to see several hospitals and depts over the last few days I have had to weigh all over the place, so it has been really intersting to see where I am one place I was as low as 93.5 kgs..........but ther scales must be weighing low as all the others have me around 96.5 - 97.1 depending on the time of if I can keep around there I will be happy for a little bit.

Anyway off to have a small snoozle before dinner!!!!




  1. Hope they get it sorted soon. Nothing worse than not knowing.
    Take care & rest as much as you can. Thinking of you :)

  2. I'm sorry you are not well but fantastic about being 93.5 on scales... even it it was just a one off!! Remember where you came from :)

  3. Hang in there Janene until they sort out what's going on.

  4. Yes, clear as mud is exactly the words I would use to describe this. I hope they come up with something soon and can move onto treatment! geez and I thought our docs were bad.....

  5. Diagnosing auto-immune disorders takes a lot of time, unfortunately. Hang in there.